Skip to main content

50 Shades of Autism

In my last post, I briefly breezed through the topic of the differences in support needs in autism. The thought was very new at that point. And something that I wanted to understand more deeply. But how do I do it? 


Most of the easily available literature on autism is still from the medical perspective. And if there is one thing that I have learnt from binging all those medical dramas, it is that medicine is still evolving. Even doctors don’t know everything. Nobody does. Medicine is ever evolving, just like us. And no shade to the medical field, but all that literature is still very deficit based. In simpler words, it is from the neurotypical lens. It does not even try to explain things from the autistic lens. And if we keep sticking to just that lens, we will still see things as problems, instead of support needs, deficits, instead of accommodations. So, what do we do?


And here is where my brilliant mind gave me the brilliant (and seemingly obvious) idea, to talk to autistic people. Hear it from the horse’s mouth, as they say (never could really understand what a horse has got to do with any of it, but well!). So here I am. Drum rolls please!!!!


Presenting…………!!!!!!!!!!!


50 Shades of Autism


(Imagining thunderous claps here)


In this series, I want to interview 50 autistic people, and get to know them and autism better. I wish to cover as much of the spectrum as possible. With this, I would like to highlight the unity in diversity in autism. I will be super honest and vulnerable here. I don’t know 50 autistic adults. I am hoping I will find them, and they will find me. And people who know me may not think of me as shy, but I am really reluctant while talking to people I don’t already know. Anyways, I am hoping I will figure it all out as we go along. Not letting my fear of failing (embarrassingly and publicly) keep me from trying. 


But I hope at the end of it I get the honor of reading 50 (or more, fingers crossed) authentic autistic voices, and have a more well rounded, personalized understanding of autism. So, watch out for more!


Comments

Popular posts from this blog

50 Shades of Autism - Sudhanshu

 Hello there!! It has been a while. Well, a lot of things were going on on the personal front, and this blog and series being just hobbies had to pay the price and take the back seat. And that's what hobbies are for, right? That's the whole fun. You can put them on the back burner, or totally take them off the stove, even out of the kitchen if you need to. But then when there's space again, you can just bring it back on. And so, here I am. Today's interview is very special. They all are, but this one is just an extra bit special, the reason being, Sudhanshu is the first autistic mom with twin autistic sons that I have had the pleasure to speak to. And because she is a seasoned parent, there was a lot I could learn from her. I cannot put it in words how incredibly fortunate I feel I have been to find this community, and to find people who have "been there, done that" and find reassurance in their life experiences.  Sudhanshu's story is a true testament of a...

50 Shades of Autism - Aniket

 Another week, another super interesting interview. When I had started this series, there was a huge part of me that felt I will not be able to continue it beyond 5 interviews. I would either get bored, or wouldn't get anyone to speak to, or both, or something else. Well, this is the 5th interview, so wish me luck :p Aniket was the first adult autistic person that I spoke to, more than a year ago, in one of the whatsapp groups. Back then, I was really struggling with one of the kids scratching me. They would scratch for anything and everything. Feeling happy, scratch mumma, feeling upset scratch mumma, thirsty, hungry, sleepy, you guessed it, scratch mumma. I used to joke that I am a victim of child abuse, as in my child is abusing me! But underneath the humor, I was losing my shit, little by little, with every single scratch. I started dreading physical contact with my child, and the only time I would feel comfortable going near him was when he was asleep. I would often get so irr...

50 Shades of Autism - Gauri

Have you ever felt this strange affinity to another human being without ever meeting them and barely even knowing them, but just by reading their words? I have. Many times. And this next interview is with one of those people.  I first found Gauri in an autism support group. She would answer parent queries. I didn't know her face, I have never heard her voice, but somehow, I really started liking her. Gauri is like a big puzzle, and in each interaction, I would get one more piece of her. And the more pieces I could put together, the more I started liking her. And what was not to like? She is the perfect combination of strength and softness. She is confident and gentle, resilient and kind. She will give you space to be, but also won't take any shit. She wouldn't hesitate to disagree with you, but wouldn't force her opinions on you either. If I go on and on about all the qualities I truly admire in her, I think I will need a whole other post. But it is quite rare that you ...